Monday, January 14, 2013
No Hugs Please!
A hug is a good thing. Right? Well not if its associated with Multiple Sclerosis. I dont know who named it MS Hug but they certainly dont feel what I do! The hug for me is more of a kick in the chest kind of feeling that lasts for minutes or up to an hour. I call it the Demon Grip. I have experienced it a few times in years past before I was diagnosed. Was in the hospital twice. Ignorant dr gave me a GI cocktail. Well I guess it worked because I threw it up and got some relief from the terrible spasm. That is what the hug/grip is. A terrible muscle spasm that can make you feel like you are having a heart attack. I recovered in a few hours but now I am feeling like crap. I suppose this is a flare. Hard to tell the difference between 'normal' life for me and a flare these days. I will rest today. Try to not talk to anyone. Maybe find a movie in my collection. Crafting is out.
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My prayers are with you. I've had fibro since I was a young girl, before they knew what fibro was. A little over 5 years ago I ended up developing CRPS/RSD, another neuro pain disorder that often mimics some MS issues. It does get hard to tell what is "normal" and what constitutes a flare and what disease/issue to attribute each sensation to. Finding a way to be productive despite the crazy hand you've been dealt often feels like a unobtainable task. Love and gentle hugs, Carey
ReplyDeleteGods peace gets me through it all! No hugs since I posted this.
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